KAMMYS KAUSE

 Kammy’s Kause, founded in 2004, is the largest fundraiser in the United States for the 4p- Support Group, a 501(c)(3) not-for-profit organization. Every year the LORMC sponsors Kammys Ride and participates in  Kammys Kause. For those who don't know, 4p- and Wolf-Hirschhorn Syndrome (WHS), are extremely rare chromosome disorders which may be suggested by the characteristic facial appearance, growth failure, developmental delays, and seizures. Early intervention such as physical, occupational, and speech therapy have proven to be vital in the development of children with 4p-. There have only been a few hundred cases reported since its discovery in 1967, one of which is my daughter. With so few 4p- children and the lack of funding, new research and information is limited. 4p- is one of the 6,000-8,000 “rare diseases” that affect as many as 30 million people worldwide, 50% of which are children. While Kammy’s Kause directly supports the 4p- Support Group our hope is to increase awareness about “rare diseases” in general, they NEED our help to be properly diagnosed. 

Click "Learn More" to be directed to kammyskause.org to find out more as well as how you can donate to this great Kause!!